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EUROPEAN ASSOCIATION OF COCHLEAR IMPLANT USERS a.s.b.l.

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Sari Hirvonen-Skarbö
EURO-CIU candidate for EDF elections
EURO-CIU 2019 Board
Left to right: Ervin Bonecz (Hungary) 2nd vicepresident; Beatrice Cusmai (Italy) secretary;Henri-François Baiverlin (Belgium) treasurer; Mª Teresa Amat (Spain) President; Robert Mandara (Finland) 1st Vicepresident.
EURO-CIU Board & Advisors
Left to right: Sari Hirvonen-Skarbö (Finland) as EDF (European Disability Forum) delegate; Leo de Raeve (Belgium) scientific advisory board member; Ervin Bonecz (Hungary) 2nd vicepresident; Beatrice Cusmai (Italy) secretary;Henri-François Baiverlin (Belgium) treasurer; Mª Teresa Amat (Spain) President; Robert Mandara (Finland) 1st Vicepresident; Brian Archbold (United Kingdom) advisory member of the Newsletter and Fernando Giménez (Spain) consultant member of the website.
EURO-CIU group 2019
Participants in the General Assembly of EURO-CIU 2019

WELCOME by the President

Teresa Amat - President
Teresa Amat - President

Welcome on the new website of our association!



Spend To Save. 2nd Edition!


EMERGENCY CALL TO THE COUNCIL 


Manifesto on Hearing Los and Disability


Newsletter


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NEWS

EURO-CIU presents a Cochlear Implant User as candidate for EDF Board

May 30, 2019 by Webmaster EURO-CIU

Sari Hirvonen-Skarbö, from EURO-CIU European Association of Cochlear Implant Users is a deaf person with a Cochlear Implant from Finland. She was operated with a Cochlear Implant 15 years ago, when she lost her hearing and only 2 years ago she recieved another, so she is a bilateral CI user. She had hearing aids since she was two years old. Her family consists of three boys and a Norwegian husband. Her eldest son has Treacher-Collins syndrome and was born without ears, now he wears bone anchored hearing devices.

In her candidature she presented her motivations:

-We must make women more participative and visible in all areas in life is paramount, so as a person with disability, deaf cochlear implant user myself I think we need more representation.
-I have learned very much working with EURO-CIU especially about Social Media, which I am now studying at Aalto Open University. We need to be more present and give visibility to disabilities in general.
-Importance for the dialog and co-operation among people with disabilities. If we fight between each other, it is difficult politicians take us seriously. That is why we need similar messages and walk together in the same direction.
-We need more awareness and knowledge about importance of CI and information of Spend2Save at Healtheconomics aspect. There are too many persons waiting for CI, or they have no knowledge about deafness. There are growing number of the elder persons in Europe with hearing loss.
-The big issue is working life; how young persons and people at working age with disabilities could cope at society.
- The accessibility Act should have been accepted as it was written by the EDF. We need to do more lobby, so the laws have a big scope that include disability perspectives.

Sari is fluent in English, Finish, Swedish, Norwegian & Danish, and she  understands a bit of written French & German.  

EDF Elections will take place this weekend during their General Assembly in Brussels. We wish Sari the best! 


The European Parliament elections.

May 21, 2019 by Webmaster EURO-CIU

We #TellEurope we #VoteForAccessibility in #EUElections ! We demand politicians to ensure #accessibility at the EU, debates with #captioning, #subtitles in all countries! #CochlearImplantUsers #ThisTimeImVotingForAccesibility! https:// #BreakCommunicationBarriers  

The European Parliament elections and subsequent changes in the leadership of the European Commission will shape our future for the next five years, a crucial period for the rights of #PersonsWithDisability & specially for us #CochlearImplantUsers & #HardOfHearing & persons with #HearingLoss! @AvecNico @ManfredWeber @ZahradilJan @TimmermansEU @vestager @SkaKeller


EURO-CIU ELECTIONS: Mª Teresa Amat, revalidates the presidency of EURO-CIU.

April 27, 2019 by Webmaster EURO-CIU

Wrocław, Poland, April 27, 2019

Mª Teresa Amat, Coordinator of AICE Federation, has been re-elected as the new President of EURO-CIU (the European Cochlear Implant Users Association), in the first round with absolute majority of votes, re-validating her presidency that will be continued maintained by Federación AICE (Spain).


Wrocław, Poland, becomes the European capital of hearing implantation.

April 26, 2019 by Webmaster EURO-CIU

On April on 25-27.04 all eyes of the #HearingLoss, #Hearing & #CochlearImplants put their attention in Wroclaw, Poland where an international was organized congress by the Polish association of people with the hearing implant "Hear without borders" and EURO-CIU ( European Association of Cochlear Implant Users ).


European Accessibility Act: a big step on a long journey. The Act’s approval is positive – but more legislation is essential.

March 13, 2019 by Webmaster EURO-CIU 


12th Symposium & 24th General Assembly EUROCIU 2019.  Wrocław (Poland)

March 9, 2019 by Webmaster EURO-CIU


WHO launches the hearWHO app for mobile devices to help detect hearing loss

March 2, 2019 by Webmaster EURO-CIU


International Cochlear Implant Day 2019.

February 22, 2019 by Webmaster EURO-CIU

25 February is the Cochlear Implant Day!

We need to change society perspective about us. 

Our numbers are growing and we have the same passion: we like to hear. Cochlear Implants make it possible.

Cochlear Implant users overcome daily all kind of obstacles, especially communication barriers. We need to increase awareness of hearing loss as a cause of social isolation, depression and deterioration of both mental and physical health for older people and, therefore, of the importance of hearing loss not just for babies or kids, but as well in adulthood and geriatric care.

February 25 has been designated International Cochlear Implant Day because on that day in 1957, two French doctors, Andre Djourno and Charles Eyries were the first to electrically stimulate the auditory nerve by placing an electrode outside the cochlea.

Celebrations will be done in more than 40 countries around the world with all kind of activities. Follow them with #CochlearImplantDay and 

#CIDay hashtags on @eurociu twitter.

For more information about hearing loss and cochlear implants: www.eurociu.eu or contact info@eurociu.eu


CI Nordic Symposium with EURO-CIU presence.

January 17, 2019 by Webmaster EURO-CIU


EURO-CIU demands to the EU Parliament and EU Commission to #BreakCommunicationBarriers during the next #EUElections 2019 


3-10 December: European Disability and Development Week 2018 

This year's European Disability and Development Week will run from the 3rd to the 10th December. It will start with the International Day of Persons with Disabilities (December 3rd) and conclude a week later on Human Rights Day (December 10th).

The Week is organised by International Disability and Development Consortium. EDF will organise one event as part of the week.


European Friendship Week 2019 

For cochlear implanted teenagers aged 11-17. Sunday 21st July to Saturday 27th July 2019.

The Ear Foundation is organising its 9th European Friendship Week, supported by EURO CI Users Association.

This is an outstanding cultural and English language experience, taking place in Yorkshire, UK.


EURO-CIU launches with 20 other European organizations a campaign for a Strong Accessibility Act 

On behalf of over 150.000 Cochlear Implant Users and 80 million Europeans with disabilities and 190 million people aged 50 and older we EURO-CIU, European Cochlear Implant Users Association, as well as the undersigned, call on EU leaders to agree on an ambitious European Accessibility Act before the 3rd December, European Day of Persons with Disabilities.


EDF 'Picture Equality' Photo Competition 2018 


 If you’ve been lucky enough to go on a plane, you’ll know that when you’re taking off or landing sometimes your ears can feel rather funny…


8th European Friendship Week (EFW) 2018 


Cochlear will donate 30€ for each completed Cochlear Quiz in the next Antwerp Congress 


Ana Peláez Narváez is the first woman with a disability  elected for the U.N. Committee on Elimination of Discrimination against Women. 


A Europe for all its people 


 8th European Friendship Week (EFW) 2018

Sunday July 22nd – Saturday July 28th 2018


Workshop and General Assembly Barcelona 2018


3 March 2018: World Hearing Day


 “Cochlear Implant: No Limits” slogan for 2018 International Cochlear Implant Day 


EURO-CIU joins the "Manifesto on Hearing Loss and Disability" 


Accessibility Act: European Parliament pass the draft “European Accessibility Act” with several improvements 


Activity report on World Hearing Day 2017, 3 March


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12th Symposium & 24th General Assembly EUROCIU 2019.  Wrocław (Poland) 


Malala inspires young people with cochlear implants for World Hearing Day - Be Everything You Can Be 



Calendar


American Cochlear Implant Alliance (ACI Alliance) to award Karl White PhD with the Lifetime Achievement Award for Service to Families and Professionals

At the Opening Session of CI2019 Pediatric on Thursday July 11 at 8:40 AM.